Special Needs Hawaii



737 Bishop Street, Mauka Tower Suite 2910
Honolulu, HI 96813





Additional Resources for Special Needs Families

4 My Child 
Website dedicated to providing information on cerebral palsy, Erb's Palsy, and other logical injuries. Committed to eliminating all preventable cases of cerebral palsy, Erb's Palsy and other neurological injuries and can help you cope with the challenges of caring for special needs child contains links and resources, special education, treatments, and lifetime benefits.

5 P Minus Society
Online resource society offering parent support groups, newsletters, information, reference library, annual national meetings,and research support. Also offers family support services, which links families with other families in their area or with a child close in age to theirs.

Alexander Graham Bell Association for the Deaf and Hard of Hearing
This site is the primary international advocate for oral education for hearing-impaired children. Offers information and referral for schools, early identification, education opportunities, etc. Parents Section is committed to extending emotional support and information to families of children who are deaf or hard of hearing. Must be a member for most services. Membership fees vary. Also provides an interactive website for teens with hearing loss. This organization provides various scholarships for all ages.

Aloha United Way 211
Maintains a database of over 4000 health and human services organizations across the state.

The ALS Association
The ALS Association is a national not-for-profit health agency dedicated solely to the fight against ALS through research, patient and community services, public education, and advocacy. ALSA helps patients and families cope with the day to day challenges of living with ALS by providing information, resources, and referrals to many sources, including a wide variety of community services. ALSA's 40 chapters provide localized patient and family support in communities across the country. Our nationwide network of 19 certified ALS clinics -- ALSA Centers -- provides state-of-the-art, multidisciplinary ALS care and services in a supportive atmosphere with an emphasis on hope and quality of life.

American Association on Intellectual and Developmental Disabilities
AAIDD promotes progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities.

American Academy of Allergy, Asthma and Immunology
Provides information and referral services and educational materials for allergy, asthma and immunology.

American Academy of Child & Adolescent Psychiatry (AACAP)
AACAP provides information to families who have children with developmental, behavioral, emotional, and/or mental disorders. Conditions: Behavioral Difficulties, Developmental Delays / Disabilities, Mental Disabilities, Mental Illness.

American Academy of Pediatrics 
Provides informational services to parents including a resource guide, child care books, immunization information, and more. The Academy also provides the Medical Home Initiatives, a center for children with special needs. The center provides support to pediatricians, families, and other medical and non-medical providers who care for children with special needs in the changing health care environment.

American Brain Tumor Association
This organization offers information, education, advocacy, research funding and more, for individuals with any kind of brain tumor, and their families/caregivers. The website has an extensive list of resources for education and support, such as local support groups, online support resources, and tumor and treatment information.

American Cancer Societiy
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service. Local chapters offer information/referral, support groups, and transportation to medical appointments.

American Council of the Blind (ACB)
National The ACB serves as a representative national organization of blind people. Provides information and referral services for the blind throughout the country. Also provides scholarship assistance to blind/visually impaired post-secondary students. The organization is also an advocate and provides legal assistance on matters relating to blindness. The Braille Forum, a free monthly national magazine, is available for anybody interested. It may be printed in braille, large print, cassette, and IBM compatible. Visit the website to locate your local chapter.

The American Heart Association 
Provided research, information, education and cmmunity programs to lead the fight against heart disease and stroke.  Use the website to find a local chapter

American Institute for Cancer Research
American Institute for Cancer Research Cancer charity that fosters research on diet and cancer prevention and educates the public about the results. Offers information on diet, reducing your risk, recipes, upcoming events, links to health sites, and foods that fight cancer.

Americans with Disabilities Act
Information and technical assistance on the Americans with Disabilities Act.

The Arc in Hawaii 
The Arc is the world's largest community based organization of and for people with intellectual and developmental disabilities. It provides an array of services and support for families and individuals. The Arc's network of chapters includes programs and supports across the lifespan: early intervention, access to a free appropriate public education, transition from school to work, health services and health promotion, income maintenance, group and independent living, recreation and aging issues.

The Army Exceptional Family Member Program
To consider the special medical and/or educational needs of the soldier's family members during the assignment process.  In addition, to assign the soldier where the facilities and required services are available but where the needs of the Army can be satisfied.

The Arthritis Foundation -  National 
The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, events and programs, medical information, and research.

AssistGuide Information Services
Provides caregivers and their loved ones access to support services.  Connects agencies, employers, providers, and consumers.  Works with benefit advisors to provide employers with comprehensive benefit programs.

Assistive Technology Resource Centers of Hawaii
Linking individuals with technology so all people can participate in every aspect of community life.  Empowering individuals to maintain dignity and control in their lives by promoting technology through advocacy, training, information, and education.

Autism Society of America -  National
National website for the Autism Society of America. Provides information on autism, events, brochures and materials. There is a nationwide online directory of ASA Chapters, professionals, government resources and service providers. Also awards college scholarships to individuals with Autism. Visit website to find eligibility requirements. 

Benefit Eligibility Screening Tool
A tool that you can use to find out if you could be eligible for benefits from any of the programs Social Security administers.

Brain Injury Association of Hawaii
Support group meetings monthly on the 2nd Wednesday of the month at 6:30 p.m. and educational meetings on the 3rd Wednesday at 7:00 p.m. at Rehab Hospital of the Pacific.

Cancer News on the Net 
Bringing patients and their families the latest news and information on cancer diagnosis, treatment and prevention. This service is offered free of charge.

CARE Hawaii, Inc.
A Mental Health Agency that serves people with mental illness, developmental disabilities and addiction.  They also help with crisis intervention.

Center for Disease Control 
Provides information about vaccine preventable diseases, the benefits of immunization, and the risks of immunization versus the risk of disease, as well as educational materials and resources.

Cerebral Palsy Guide 
This is a site whose main goal is to raise awareness about cerebral palsy and the children and parents it affects. Cerebral palsy is a disease that can affect individuals in different ways, but most commonly it affects their coordination and muscle movement. Each year 10,000 children are diagnosed in the United States. Cerebral Palsy Guide provides free educational information, financial options, and emotional support for those affected by cerebral palsy.

Cerebral Palsy Guidance 
Cerebral Palsy Guidance provides the most accurate and comprehensive information available on the web to date regarding cerebral palsy and associated developmental conditions

Cerebral Palsy Source 
Provides the latest information and news on research and treatments on cerebral palsy and related birth injuries. Also provides access to experienced cerebral palsy attorneys.

Children's Brain Tumor Foundation 
Provides an array of information and resources to assist in accessing expert care to ensure quality of life for a child with a brain or spinal cord tumor. Provides information support groups, hospital stays, going home, school issues, and helpful resources with current up-to-date information. Sponsors a week at Camp Sunshine for families with children who have a brain or spinal cord tumor. This is the only program of its kind in the country -- contact the Foundation for more information. 

Childrens Dentist Directory 
Dental directory of the entire United Sates.  Has selection for any state available for pediatric dentists.

Children's Hospice International 
Promotes hospice support through pediatric care facilities, and encourages the inclusion of children in existing and developing hospice and home-care programs. CHI offers the following services: resources and referrals for children with life-threatening conditions and their families, help with establishing children's hospice programs worldwide, and education and training for health care providers.

Community Children's Council Office
Provides statewide support and assistance to the Community Children's Councils (local community groups formed to help develop and evaluate the system of care mandated by the Felix Consent Decree).  Also facilitates information and communication exchanges between the community and State agencies.

Council of Administrators of Special Education
A professional organization serving special education administrators. Promotes professional leadership and research, and information to improve special education and other services.

Cystic Fibrosis Foundation – National
The CF Foundation provides medical information and awards funding for research on Cystic Fibrosis. The foundation also provides financial assistance in the form of college scholarships and Patient Assistance Programs for those who qualify. See website for eligibility guidelines and applications.

Online only resource directory for parents seeking pediatric dentistry in their local area. The site Includes information as well as recreation and games for kids and community information. Covers all regions within the United States.

Developmental Disabilities Council
The Hawai'i State Council on Developmental Disabilities is mandated by federal and state laws to: plan, coordinate, evaluate, monitor, and advocate on behalf of individuals with developmental disabilities; and assure that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promote independence, productivity, and integration, and inclusion into the community.

The federal government's one-stop Web site for people with disabilities, their families, employers, veterans and service members, workforce professionals and many others. DisabilityInfo.gov connects people with disabilities to the information and resources they need to actively participate in the workforce and in their communities.

Disability and Communication Access Board (DCAB)
A body of Governor appointed volunteers, including persons with disabilities and their family members, who advocate and promote the full integration, equal access, and quality of life for persons with disabilities. 

Disabled Children's Fund
DCF is a humanitarian organization committed to serving the indigent and oppressed children and their families worldwide.

Easter Seals
A non-profit, community based health organization dedicated to increasing the independence of children and adults with disabilities or other special needs.

Easter Seals Hawaii Sibshops
Brothers and sisters 6-12 of siblings with disabilities meet six times a year, usually on the 1st Saturday of the month from 11:00 a.m.-2:00 p.m.  Cost is $10 per child per Sibshop and includes lunch and all activities.  Call to register.

Epilepsy Foundation – National
An online source for information, community and resources, this website features information about epilepsy and furthers the vision of the Epilepsy Therapy Project to create a powerful resource for everyone involved in caring for, or treating, those with epilepsy. Information is provided for children, teens, and caregivers

Exceptional Parent Magazine
Continuing 32 award-winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.

Foster Care & Adoptive Community
Provides information, training and support for foster/adoptive parents, including those who are caring for children with disabilities.  Provides a quarterly newsletter and sponsors an annual conference.

Give Kids The World Village
Give Kids The World is a non-profit resort that creates magical memories for children with life-threatening illnesses and their families. Wish-granting organizations coordinate transportation to Orlando, while Give Kids The World provides accommodations at its whimsical resort, attractions tickets, and meals for a week-long fantasy vacation. Children ages 3-18, battling a life-threatening illness as deemed by a medical doctor are eligible, regardless of income. Families that visit Give Kids The World must be referred by a wish-granting organization or foundations.
Conditions: AIDS / HIV, ALS, Blood Disorders, Brain, Brittle Bone Disease, Cancer, Celiac Sprue, Cerebral Palsy, Cystic Fibrosis, Developmental Delays / Disabilities, Diabetes, Epilepsy, General, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Kidney, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Prader-Willi Syndrome, Sickle Cell, Spina Bifida, Spinal Cord Injuries

Goodwill Industries of Hawaii, Inc.
Goodwill has been providing personalized supports and services for people with developmental disabilities for over 30 years.  We offer three service locations, Haleiwa, Hilo, and Honolulu.  Services include Adult Day Health, Personal Assistance/Habilitation, and Habilitation Supported Employment.

Guide Dog Foundation
The Guide Dog Foundation matches students and guide dogs together. Students come from all over the U.S. and the world to undergo a 25-day training program to learn skills and commands needed to foster a successful working team. Upon graduation, student and guide dog return home together. There is no cost to the student for the training or dog. Travel within the U.S., Canada and Mexico will be paid and there are no fees for room and board during training

Hawaii Disability Rights Center
Is the designated Protection and Advocacy (P&A) System for Hawaii's estimated 180,000 residents with disabilities.  P&A systems are authorized by Congress in each state and territory of the United States to defend and enforce the human, civil and legal rights of people with disabilities and to protect them from discrimination.

Hawaii Down Syndrome Congress
Meets periodically on Saturdays from 10:00 a.m. to noon at 710 Green Street (Easter Seals) in Honolulu.  Call for dates.  Also publishes a newsletter of families.

Hawaii School for the Deaf & the Blind
Provides diagnostic and prescriptive services to all students with hearing and visual impairments, technical assistance to schools who are serving these students and a day or boarding program for select students as determined by their IEP.

Honolulu Department of Parks and Recreation- Therapuetic Recreation
The Department of Parks and Recreation, City and County of Honolulu is committed to making all of its programs and leisure services accessible to everyone, including persons with disabilities.  If you have need for reasonable modification, please call your local park or Therapeutic Recreation Unit.

HUGS (Help, Understanding & Group Support)
Provides support and family services to parents of children birth to 21 diagnosed with having a life threatening illness or considered to be medically fragile.  Provides service to the whole family.

Humanitarian Foundation - Grottos of North America
A nonprofit organization that brings "Special Smiles" to children with special needs by providing them much-needed dental care.

Hydrocephalus Association – National
National non-profit organization providing support, resources, education and advocacy for families and individuals dealing with the complexities of Hydrocephalus. Publications are also available in Spanish. Services include an Outreach Program which provides free information to families and individuals; telephone support for one-to-one personal support by trained specialists; social activities and an annual conference for providers and families.

An online resource about inclusion.  Together We're Better.  All Means All. Inclusion Means WITH - Not Just IN.

Jonah & The Whale Foundation
Provides parents with Parent Binders and resource materials to encourage organization of medical and educational information and to further encourage better communication between all parties involved. The foundation also has a web library with books about many diseases and disabilities for parents to use or even purchase at low cost, a collection of durable medical equipment is also available for parents who have exhausted every avenue to obtain insurance coverage. Finally the foundation offers emotional support for the parents and siblings as well family networking for parents to meet others in similar circumstances.

Juvenile Diabetes Research Foundation International
Provides information, referral and disease education services for children with diabetes. Also provides a newsletter, access to clinical trials and advocacy.

Kapiolani Women's and Children's Hospital (Hawaii Pacific Health)
Offers services to women and children - pediatric, bone and joint, oncology, heart, counselling and support groups throughout the Islands.

Kids As Self Advocates
KASA is a national, grassroots project created by youth with disabilities for youth.

Learning Disabilities Association of Hawai'i
Supports parents of children with any disability through: Information/Referral program, Education and Training program, Advocacy and Mentoring program, Persons-In-Need Project

Leukemia & Lymphoma Society – National
Provides financial assistance for some medications, co-payments, therapy treatment, and transportation to treatment centers and for certain types of blood tests for those in need. Anyone verified by physicians as having lymphoma myeloma, Hodgkins disease or leukemia is eligible. Also provides information and referral services, support groups, and discussion boards.
Conditions: Cancer, Hodgkin's Disease, Leukemia and Lymphoma, Myeloma

Locks of Love
A non-profit organization that provides custom, vacuum-cap hairpieces to financially disadvantaged children with long-term medical hair loss.

Make-A-Wish Hawaii
Local Hawaii chapter of Make-A-Wish, a national organization granting wishes to children with life threatening impairments.

March of Dimes – National
Offers education, information and referral services to families with children of developmental disabilities. For questions about March for Babies, special events, or other local activities, please contact the local March of Dimes office nearest you
Conditions: Developmental Delays / Disabilities, Physical Disabilities

Medic Alert
The MedicAlert Foundation is a leading healthcare informatics organization dedicated to providing services to our members that protect and save lives. MedicAlert provides comprehensive Kid Smart services that can safeguard and identify your child in an emergency. With a single phone call, emergency response personnel can access medical history and records, protecting your child against potentially adverse treatments or medication conflicts. When you complete the application, you must list all conditions, allergies and medicines even though they are not listed on the application. Cost is just $39.95 for first year enrollment, and $25 per year thereafter. Sponsored memberships are available for those who meet the requirements. E-mail: If you are a MedicAlert® Member please include your name & Membership Number.

National Alopecia Areata Foundation (NAAF)
The NAAF supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. Provides information and referrals and supports local support groups.

The National Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.

Online Speech Pathology 
OnlineSpeechPathologyPrograms.net was created to help prospective speech pathology students find the right program that fits their educational needs. It offers articles that cover career opportunities and answers to common questions students and professionals have about the diverse field of speech pathology.

Sacred Healing Arts  
Dr. Taketa is a naturopathic physician and acupuncturist who treats the underlying causes of autism spectrum disorders, ADHD/ADD & other special needs through holistic biomedical treatment for children and adults.  She has been trained through the Autism Research Institute (formerly known as DAN!) and Medical Academy of Pediatric Special Needs.  She also has a brother on the autism spectrum.

Sesame Street and Autism
A website dedicated to helping families discover the uniqueness of their children with autism.

Special Needs Information (Miscellaneous)
A robust site filled with information on special needs planning, law, forums.  A great place to visit.

Tips For Travelers With Disabilities
A guide to airlines' disability travel accomodations written by Cheapflights Media.

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