Featured Links & Physician's Information

 4 My Child  website dedicated to providing information on cerebral palsy, Erb’s Palsy, and other her logical injuries. Committed to eliminating all preventable cases of cerebral palsy, Erb’s Palsy and other neurological injuries and can help you cope with the challenges of caring for special needs child contains links and resources, special education, treatments, and lifetime benefits.

Alexander Graham Bell Association for the Deaf and Hard of Hearing This site is the primary international advocate for oral education for hearing-impaired children. Offers information and referral for schools, early identification, education opportunities, etc. Parents Section is committed to extending emotional support and information to families of children who are deaf or hard of hearing. Must be a member for most services. Membership fees vary. Also provides an interactive website for teens with hearing loss: http://www.agbell.org. This organization provides various scholarships for all ages.

Aloha United Way 211 - Maintains a database of over 4000 health and human services organizations across the state.

The Army Exceptional Family Member Program - To consider the special medical and/or educational needs of the soldier's family members during the assignment process.  In addition, to assign the soldier where the facilities and required services are available but where the needs of the Army can be satisfied.

National Alopecia Areata Foundation (NAAF)
The NAAF supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. Provides information and referrals and supports local support groups.

American Association on Intellectual and Developmental Disabilities - AAIDD promotes progressive policies, sound research, effective practices and universal human rights for people with intellectual and developmental disabilities.

Americans with Disabilities Act - Information and technical assistance on the Americans with Disabilities Act.

AssistGuide Information Services - Provides caregivers and their loved ones access to support services.  Connects agencies, employers, providers, and consumers.  Works with benefit advisors to provide employers with comprehensive benefit programs.

Assistive Technology Resource Centers of Hawaii - Linking individuals with technology so all people can participate in every aspect of community life.  Empowering individuals to maintain dignity and control in their lives by promoting technology through advocacy, training, information, and education.

Alliance for Technology Access -  National Administrative Office. The Alliance for Technology Access (ATA) is a network of community-based Resource Centers, Developers, Vendors and Associates dedicated to providing information and support services to children and adults with disabilities, and increasing their use of standard, assistive, and information technologies. ATA Members can be found all across the country. 

The ALS Association is a national not-for-profit health agency dedicated solely
to the fight against ALS through research, patient and community services,
public education, and advocacy. ALSA helps patients and families cope with the
day to day challenges of living with ALS by providing information, resources,
and referrals to many sources, including a wide variety of community services.
ALSA's 40 chapters provide localized patient and family support in communities
across the country. Our nationwide network of 19 certified ALS clinics -- ALSA
Centers -- provides state-of-the-art, multidisciplinary ALS care and services
in a supportive atmosphere with an emphasis on hope and quality of life.

American Academy of Allergy, Asthma and Immunology.
Provides information and referral services and educational materials for
allergy, asthma and immunology.

American Academy of Child & Adolescent Psychiatry (AACAP) AACAP provides information to families who have children with developmental,
behavioral, emotional, and/or mental disorders. Conditions: Behavioral
Difficulties, Developmental Delays / Disabilities, Mental Disabilities, Mental
Illness

American Academy of Pediatrics Provides informational services to parents including a resource guide, child care books,
immunization information, and more. The Academy also provides the Medical Home
Initiatives, a center for children with special needs. The center provides
support to pediatricians, families, and other medical and non-medical providers
who care for children with special needs in the changing health care
environment.

American Brain Tumor Association This organization offers information, education, advocacy, research funding and more, for individuals with any kind of brain tumor, and their
families/caregivers. The website has an extensive list of resources for
education and support, such as local support groups, online support resources,
and tumor and treatment information.

American Cancer Societiy The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by
preventing cancer, saving lives, and diminishing suffering from cancer, through
research, education, advocacy, and service. Local chapters offer information/
referral, support groups, and transportation to medical appointments.

American Council of the Blind (ACB) – National
The ACB serves as a representative national organization of blind people.
Provides information and referral services for the blind throughout the
country. Also provides scholarship assistance to blind/visually impaired
post-secondary students. The organization is also an advocate and provides
legal assistance on matters relating to blindness. The Braille Forum, a free
monthly national magazine, is available for anybody interested. It may be
printed in braille, large print, cassette, and IBM compatible. Visit the
website to locate your local chapter.

The American Heart Association  Provided research, information, education and cmmunity programs to lead the fight against heart disease and stroke.  Use the website to find a local chapter

American Institute for Cancer Research American Institute for Cancer Research
Cancer charity that fosters research on diet and cancer prevention and educates
the public about the results. Offers information on diet, reducing your risk,
recipes, upcoming events, links to health sites, and foods that fight cancer.

American Kidney Fund  AKF offers a host of programs to our smallest patients including the Individual Pediatric Patient Grants Program, Kidney Calendar Contest and Washington D.C.
Weekend, the AKF Summer Enrichment Program, and a Public Education series
designed just for kids. Direct financial assistance programs are offered by the
American Kidney Fund to needy dialysis and kidney transplant patients
nationwide. For further information about these and other programs please
contact the social worker at your dialysis center.
 

American Liver Foundation (ALF) - National.  A national volunteer organization providing education, advocacy and a support network for people with liver disease, their families and health care professionals. Services include referrals to support groups for individuals
with hepatitis, liver transplantation and other liver-related diseases.

Ameritrans Ameritrans provides long distance non-emergency, stretcher transportation throughout the United States for individuals of all ages. There is a 350 mile minimum for our services. A family member or another person can ride with the transported individual at no additional charge. Ameritrans does not provide medical care during transport. We do use licensed paramedics and EMT’s because of their training and experience in transporting patients and conducting themselves within the healthcare arena. We operate 24 hours a day, 7 days a week.
Conditions: (Other), 5p- Syndrome, ADHD / ADD, Adrenal Hyperplasia, Congenital , AIDS / HIV, Allergies, Alopecia Areata, ALS, Amputee, Aphasia, Asperger's Syndrome, Asthma, Autism, Behavioral Difficulties, Bladder Exstrophy, Blind / Vision Impaired, Blood Disorders, Brain, Brittle Bone Disease, Burns, Cancer, Celiac Sprue, Cerebral Palsy, Chromosomal, Cleft Palate, Craniofacial, Cystic Fibrosis, Deaf / Hearing Impaired, Depression, Developmental Delays / Disabilities, Diabetes, Disabilities, Down Syndrome, Dual Sensory Impaired, Dyslexia, Eczema, Epilepsy, Established Condition, General, Growth Problems, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Juvenile Rheumatoid Arthritis, Kidney, Language / Communications Disorders, Learning Disabilities, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mental Disabilities, Mental Illness, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Orthopedic, Physical Disabilities, Prader-Willi Syndrome, Sickle Cell, Social Skills Deficits, Special Needs, Spina Bifida, Spinal Cord Injuries, Tourette Syndrome
 

The Amputee Coalition of America (ACA) is a national, non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences. The ACA operates the National Limb Loss Information Center (NLLIC), which provides comprehensive resources for people with limb loss, as well as their families, friends, and health care professionals involved in their lives. Programs include: Health Care Provider Information, Youth Activities Program, Youth Camp, Youth Amputee Zine, The National Peer Network, and more.
 

 Aplastic Anemia & MDS International Foundation Inc.  Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and other bone marrow failure diseases, providing educational materials, medical information, and peer support. Free of charge, you may have an information packet mailed to you. Please see website for more information. The organization also builds public awareness to the general public and raises support to fund research.
 

The Arc The Arc is the world’s largest community based organization of and for people with intellectual and developmental disabilities. It provides an array of services and support for families and individuals. The Arc’s network of chapters includes programs and supports across the lifespan: early intervention, access to a free appropriate public education, transition from school to work, health services and health promotion, income maintenance, group and independent living, recreation and aging issues.
 

The Arc in Hawaii - An advocacy organization committed to protecting the rights of people with intellectual impairment and related developmental disabilities and to promoting opportunities for their full inclusion in the life of their communities.

The Arthritis Foundation -  National The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, events and programs, medical information, and research.
 

Autism Society of America -  National National website for the Autism Society of America. Provides information on autism, events, brochures and materials. There is a nationwide online directory of ASA Chapters, professionals, government resources and service providers. Also awards college scholarships to individuals with Autism. Visit website to find eligibility requirements.
 

Barth Syndrome The Barth Syndrome Foundation is the only group in existence globally in which families, physicians and scientists work together to address Barth syndrome – a rare but serious X-linked recessive disorder comprised of cardiomyopathy, neutropenia, skeletal muscle weakness, exercise intolerance, extreme fatigue and growth delay (in varying degrees). We offer information to physicians and families, promote awareness, encourage and fund research, and maintain an international registry.
Conditions: Blood Disorders, Developmental Delays / Disabilities, Disabilities, Growth Problems, Heart, Learning Disabilities, Mitochondrial Disease, Neuromuscular Disorders, Special Needs
 

Benefit Eligibility Screening Tool - A tool that you can use to find out if you could be eligible for benefits from any of the programs Social Security administers.

Brain Injury Association of Hawaii - Support group meetings monthly on the 2nd Wednesday of the month at 6:30 p.m. and educational meetings on the 3rd Wednesday at 7:00 p.m. at Rehab Hospital of the Pacific.

Cancer Fund of America Non profit organization set up to help cancer patients, hospices and other healthcare providers by way of sending nutritional items, diapers, bed pads and other items free of charge directly to them. Cancer Fund requires an application for assistance be completed and mailed to them, including patient information as well as a Physicians Form verifying the cancer diagnosis. Contact Cancer Fund for applications.
 

 Cancer Kids Cancer Kids is an online resource that provides information about cancer and treatments explained at a child's level of understanding, games and activities, and information for parents. The website also provides links to the personal web pages of children who are battling cancer through the Stories section of the website.

Cancer News on the Net Bringing patients and their families the latest news and information on cancer diagnosis, treatment and prevention. This service is offered free of charge.

CARE Hawaii, Inc. - A Mental Health Agency that serves people with mental illness, developmental disabilities and addiction.  They also help with crisis intervention.

Caring Voice Coalition This charitable organization was established to serve the comprehensive needs of individuals of all ages affected by serious, chronic disorders. Services include financial assistance to pay a portion or all of a patient's insurance premium or copay; insurance education and counseling; and information and referral for medical assistance, medications, support groups, and locating community social service programs that may assist with living necessities such as shelter, clothing, food, and transportation. The patient must have one of the specific chronic illnesses supported by Caring Voice Coalition - check the website for a list of illnesses.
 

Center for Assistive Technology & Environmental Access (CATEA) Center for Assistive Technology & Environmental Access (CATEA)
Search for Assistive Technology - choose from four tools to help you find products that match your needs. Our database contains thousands of products related to specific disabilities and activities. Web Resources - Links to online resources, discussion lists, and chat rooms
Conditions: Blind / Vision Impaired, Deaf / Hearing Impaired, Disabilities, Orthopedic, (Other), Special Needs

Center for Disease Control Provides information about vaccine preventable diseases, the benefits of immunization, and the risks of immunization versus the risk of disease, as well as educational materials and resources.
Conditions: (Other), ADHD / ADD, AIDS / HIV, Allergies, Asthma, Cancer, Diabetes, Epilepsy, Heart, Juvenile Rheumatoid Arthritis, Meningitis

Cerebral Palsy Source Provides the latest information and news on research and treatments on cerebral palsy and related birth injuries. Also provides access to experienced cerebral palsy attorneys.

Child and Adolescent Bipolar Foundation - Inf ormation on bipolar disorder in children and teens, resources at your fingertips and a network of parents and experts who can help.

Child Care Aware This online source provides guidance and referrals to local child care providers, information on state licensing requirements, availability of child care subsidies, and family support services.
Conditions: (Other), 5p- Syndrome, ADHD / ADD, Adrenal Hyperplasia, Congenital , AIDS / HIV, Allergies, Alopecia Areata, ALS, Amputee, Aphasia, Asperger's Syndrome, Asthma, Autism, Behavioral Difficulties, Bladder Exstrophy, Blind / Vision Impaired, Blood Disorders, Brain, Brittle Bone Disease, Burns, Cancer, Celiac Sprue, Cerebral Palsy, Chromosomal, Cleft Palate, Craniofacial, Cystic Fibrosis, Deaf / Hearing Impaired, Depression, Developmental Delays / Disabilities, Diabetes, Disabilities, Down Syndrome, Dual Sensory Impaired, Dyslexia, Eczema, Epilepsy, Established Condition, General, Growth Problems, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Juvenile Rheumatoid Arthritis, Kidney, Language / Communications Disorders, Learning Disabilities, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mental Disabilities, Mental Illness, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Orthopedic, Physical Disabilities, Prader-Willi Syndrome, Sickle Cell, Social Skills Deficits, Special Needs, Spina Bifida, Spinal Cord Injuries, Tourette Syndrome

 Children and Adults with Attention Deficit/Hyperactivity Disorder (CHADD) Children and Adults with Attention Deficit/Hyperactivity Disorder (CHADD) – National
CHADD's primary objectives are: to provide a support network for parents and caregivers; to provide a forum for continuing education; to be a community resource and disseminate accurate, evidence-based information about AD/HD to parents, educators, adults, professionals, and the media; to promote ongoing research; and to be an advocate on behalf of the AD/HD community. CHADD also operates the National Resource Center on AD/HD, which is funded by the Centers for Disease Control and Prevention. There is a small annual fee for family membership, but information on the website is open to the public.
 

Children’s Brain Tumor Foundation Provides an array of information and resources to assist in accessing expert care to ensure quality of life for a child with a brain or spinal cord tumor. Provides information support groups, hospital stays, going home, school issues, and helpful resources with current up-to-date information. Sponsors a week at Camp Sunshine for families with children who have a brain or spinal cord tumor. This is the only program of its kind in the country -- contact the Foundation for more information..
 

Children’s Defense Fund – National Offers information and referral service to ensure children who are especially from low-income household to have a healthy start in their lives. Also offers Parent Resource Network (PRN) to help finding the necessary resources for parents. Helps all children gain access to comprehensive, quality, health care and education services.
 

Childrens Dentist Directory Dental directory of the entire United Sates.  Has selection for any state available for pediatric dentists.
Conditions: (Other), 5p- Syndrome, ADHD / ADD, Adrenal Hyperplasia, Congenital , AIDS / HIV, Allergies, Alopecia Areata, ALS, Amputee, Aphasia, Asperger's Syndrome, Asthma, Autism, Behavioral Difficulties, Bladder Exstrophy, Blind / Vision Impaired, Blood Disorders, Brain, Brittle Bone Disease, Burns, Cancer, Celiac Sprue, Cerebral Palsy, Chromosomal, Cleft Palate, Craniofacial, Cystic Fibrosis, Deaf / Hearing Impaired, Depression, Developmental Delays / Disabilities, Diabetes, Disabilities, Down Syndrome, Dual Sensory Impaired, Dyslexia, Eczema, Epilepsy, Established Condition, General, Growth Problems, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Juvenile Rheumatoid Arthritis, Kidney, Language / Communications Disorders, Learning Disabilities, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mental Disabilities, Mental Illness, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Orthopedic, Physical Disabilities, Prader-Willi Syndrome, Sickle Cell, Social Skills Deficits, Special Needs, Spina Bifida, Spinal Cord Injuries, Tourette Syndrome
 

Children’s Hemiplegia & Stroke Association  A non-profit organization offering information, counseling, and support to families of children with Hemiplegia, Hemiparesis, Cerebral Palsy, and prenatal/infant/childhood stroke. Provides an e-mail support group, hosts an annual retreat and medical conference for these families, supports local activities, and provides college scholarships. To find local support, please send an e-mail or visit the website for more information.

Children’s Hospice International Promotes hospice support through pediatric care facilities, and encourages the inclusion of children in existing and developing hospice and home-care programs. CHI offers the following services: resources and referrals for children with life-threatening conditions and their families, help with establishing children's hospice programs worldwide, and education and training for health care providers.
 

Children's Liver Association for Support Services (CLASS)
Serves emotional, educational, and financial needs of families coping with childhood liver disease and transplantation. Offers telephone help line, financial aid for families, and parent matching program to link families for friendship, information, and mutual support.

Children’s Organ Transplant Association
The Children's Organ Transplant Association assists patients who require a life-saving organ, bone marrow, cord blood or stem cell transplant. The Association works with any patient who needs a transplant due to a genetic disease such as Cystic Fibrosis, and all patients 21 and younger for any disease or complication, providing fundraising assistance and family support and educating the public on the need for organ donors and transplants.
Conditions: (Other), Cystic Fibrosis, Liver, Lung

Common IEP Mistakes - Outlines common mistakes parents make when creating an IEP (usually their first), or going through the IEP process.

Community Children's Council Office - Provides statewide support and assistance to the Community Children's Councils (local community groups formed to help develop and evaluate the system of care mandated by the Felix Consent Decree).  Also facilitates information and communication exchanges between the community and State agencies.

Corporate Angel Network, Inc.
Provides free air transportation for cancer patients to and from recognized treatment centers in the United States without regard to their financial resources. The organization arranges for patients to use empty seats on corporate aircraft operating business flights. Qualifications are: Needing to travel for treatment, consultation, or check-up; able to walk up the stairs of a private jet without assistance; requiring no form of life support or medical help on board. To make arrangements patients caregiver calls to register when there is a specific travel date. Requests can be taken up to three weeks in advance. Information needed includes: name, address, and telephone number of current physician. Airline makes back-up travel arrangements.
Conditions: Cancer, Hodgkin's Disease, Leukemia and Lymphoma

Council of Administrators of Special Education
A professional organization serving special education administrators. Promotes professional leadership and research, and information to improve special education and other services.
 

Council for Exceptional Children (CEC)
CEC is a professional organization dedicated to improving educational outcomes for children students with disabilities. This information helps the teachers, administrators, parents, and paraprofessionals of the child with disabilities. They convey this through journals, newsletters, and the Web with information on new research findings, classroom practices that work, federal legislation, and policies, conventions and conferences, and special education publications. Each year, the council awards 27 students who have excelled despite their disability.
 

Council of Parent Attorneys and Advocates (COPAA)
This is an online nonprofit organization of attorneys, advocates and parents working together to ensure educational services for children with disabilities. Using volunteerism and the Internet, COPAA promotes an environment of "collaboration as equals" between parents and educators, through parent training programs, support, publications and communications. COPAA does not provide direct legal services, individual advocacy or representation to children with disabilities.
 

Crohn’s & Colitis Foundation of America Dedicated to finding the cure for Crohn's disease and ulcerative colitis by performing research studies. Also provides medical information on the disease, advice on diet and nutrition, treatment and surgery options, clinical trials, and referrals to physicians. Camp Oasis is an all-day summer camp program designed for kids with Crohn's disease or ulcerative Colitis, located throughout the U.S. Also provides an online community with forums, personal stories, and a resource center. There are local chapters and resources available.

Cure Autism Now Foundation Cure Autism Now is an organization of parents, physicians, and researchers, dedicated to promoting and funding research with direct clinical implications for treatment and a cure for autism. They have resources for parents that include a newsletter, possible clinical study participation, current research conducted on autism and other useful links.

Cystic Fibrosis Foundation – National
The CF Foundation provides medical information and awards funding for research on Cystic Fibrosis. The foundation also provides financial assistance in the form of college scholarships and Patient Assistance Programs for those who qualify. See website for eligibility guidelines and applications.
 

Dentists4Kids.com
Online only resource directory for parents seeking pediatric dentistry in their local area. The site Includes information as well as recreation and games for kids and community information. Covers all regions within the United States.
Conditions: (Other), 5p- Syndrome, ADHD / ADD, Adrenal Hyperplasia, Congenital , AIDS / HIV, Allergies, Alopecia Areata, ALS, Amputee, Aphasia, Asperger's Syndrome, Asthma, Autism, Behavioral Difficulties, Bladder Exstrophy, Blind / Vision Impaired, Blood Disorders, Brain, Brittle Bone Disease, Burns, Cancer, Celiac Sprue, Cerebral Palsy, Chromosomal, Cleft Palate, Craniofacial, Cystic Fibrosis, Deaf / Hearing Impaired, Depression, Developmental Delays / Disabilities, Diabetes, Disabilities, Down Syndrome, Dual Sensory Impaired, Dyslexia, Eczema, Epilepsy, Established Condition, General, Growth Problems, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Juvenile Rheumatoid Arthritis, Kidney, Language / Communications Disorders, Learning Disabilities, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mental Disabilities, Mental Illness, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Orthopedic, Physical Disabilities, Prader-Willi Syndrome, Sickle Cell, Social Skills Deficits, Special Needs, Spina Bifida, Spinal Cord Injuries, Tourette Syndrome

Developmental Disabilities Council - The Hawai'i State Council on Developmental Disabilities is mandated by federal and state laws to: plan, coordinate, evaluate, monitor, and advocate on behalf of individuals with developmental disabilities; and assure that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promote independence, productivity, and integration, and inclusion into the community.

American Diabetes Association (ADA) The ADA is the nation's leading nonprofit health organization providing diabetes research, information and advocacy. The mission of the organization is to prevent and cure diabetes and to improve the lives of all people affected by diabetes. To fulfill this mission, the American Diabetes Association funds
research, publishes scientific findings, provides information and other
services to people with diabetes, their families, health care professionals and
the public. Local chapters offer support groups, fundraising events, and local
resources.

DisabilityInfo.gov - The federal government's one-stop Web site for people with disabilities, their families, employers, veterans and service members, workforce professionals and many others. DisabilityInfo.gov connects people with disabilities to the information and resources they need to actively participate in the workforce and in their communities.

Disability and Communication Access Board (DCAB) - A body of Governor appointed volunteers, including persons with disabilities and their family members, who advocate and promote the full integration, equal access, and quality of life for persons with disabilities. 

Disabled Children's Relief Fund - DCRF focuses special attention helping children throughout the U.S. that do not have adequate health insurance, especially the physically challenged.  In some cases, DCRF may be the last resort.

Discovery Toys - Educational toys for children of all ages including those with special needs.

Division of Vocational Rehabilitation - The Vocational Rehabilitation and Services for the Blind Division administers three programs that separate but related functions to provide for the rehabilitation needs of persons with disabilities to secure employment and to lead full and productive lives.

Dyslexia Help! - Dyslexia is a learning disability that hinders reading progress, which may affect 1 in 4 Americans.  Job Skills Training is offering "Catch Up With Reading" for people who have dyslexia, ADD/ADHD, slow learners, gifted, and students learning English as a second language.

Easter Seals - A non-profit, community based health organization dedicated to increasing the independence of children and adults with disabilities or other special needs.

Easter Seals Hawaii Sibshops - Brothers and sisters 6-12 of siblings with disabilities meet six times a year, usually on the 1st Saturday of the month from 11:00 a.m.-2:00 p.m.  Cost is $10 per child per Sibshop and includes lunch and all activities.  Call to register.

Epilepsy Foundation – National
An online source for information, community and resources, this website features information about epilepsy and furthers the vision of the Epilepsy Therapy Project to create a powerful resource for everyone involved in caring for, or treating, those with epilepsy. Information is provided for children, teens, and caregivers
 

Exceptional Parent Magazine - Continuing 32 award-winning years of providing information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.

Families and Advocates Partnership for Education - A partnership that aims to improve the educational outcomes for children with disabilities.  It links families, advocates, and self-advocates to information about the Individuals with Disabilities Education Act (IDEA).

Families of SMA (Spinal Muscular Atrophy)
A national organization dedicated to research and development related to Spinal Muscular Atrophy, a form of muscular dystrophy that primarily affects children. The organization provides medical information on SMA, a forum to connect families with other people affected by SMA, advocacy, and referrals to other important SMA organizations. Also awards grants for researchers to accelerate the discovery of an effective treatment for SMA. There are 24 chapters throughout the U.S. holding numerous fundraising events, golf tournaments, galas, and more. They also provide support and assistance to local families and patients. Visit the website to find your local chapter.
 

Find Childrens Programs - A local networking resource for families with members with special needs.

The National Fragile X Foundation - The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.

Give Kids The World Villiage
Give Kids The World is a non-profit resort that creates magical memories for children with life-threatening illnesses and their families. Wish-granting organizations coordinate transportation to Orlando, while Give Kids The World provides accommodations at its whimsical resort, attractions tickets, and meals for a week-long fantasy vacation. Children ages 3-18, battling a life-threatening illness as deemed by a medical doctor are eligible, regardless of income. Families that visit Give Kids The World must be referred by a wish-granting organization or foundations.
Conditions: AIDS / HIV, ALS, Blood Disorders, Brain, Brittle Bone Disease, Cancer, Celiac Sprue, Cerebral Palsy, Cystic Fibrosis, Developmental Delays / Disabilities, Diabetes, Epilepsy, General, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Kidney, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Prader-Willi Syndrome, Sickle Cell, Spina Bifida, Spinal Cord Injuries
 

Goodwill Industries of Hawaii, Inc. - Goodwill has been providing personalized supports and services for people with developmental disabilities for over 30 years.  We offer three service locations, Haleiwa, Hilo, and Honolulu.  Services include Adult Day Health, Personal Assistance/Habilitation, and Habilitation Supported Employment.

 Guide Dog Foundation for the Blind, Inc
The Guide Dog Foundation matches students and guide dogs together. Students come from all over the U.S. and the world to undergo a 25-day training program to learn skills and commands needed to foster a successful working team. Upon graduation, student and guide dog return home together. There is no cost to the student for the training or dog. Travel within the U.S., Canada and Mexico will be paid and there are no fees for room and board during training
 

Hawaii Center for the Deaf & the Blind - Provides diagnostic and prescriptive services to all students with hearing and visual impairments, technical assistance to schools who are serving these students and a day or boarding program for select students as determined by their IEP.

Hawaii Disability Rights Center - Is the designated Protection and Advocacy (P&A) System for Hawaii's estimated 180,000 residents with disabilities.  P&A systems are authorized by Congress in each state and territory of the United States to defend and enforce the human, civil and legal rights of people with disabilities and to protect them from discrimination. 

Hawaii Down Syndrome Congress - Meets periodically on Saturdays from 10:00 a.m. to noon at 710 Green Street (Easter Seals) in Honolulu.  Call for dates.  Also publishes a newsletter of families.

Hawaii Families As Allies - A statewide parent-controlled family network organization, recognized in Hawaii and nationally as a voice on behalf of families of children and adolescents with emotional and/or behavioral challenges.

Hawaii Foster Parent Association - Provides information, training and support for foster/adoptive parents, including those who are caring for children with disabilities.  Provides a quarterly newsletter and sponsors an annual conference.

Hawaii Young Adults in Transition - We are a family support group on a mission to provide services and programs for teens and young adults with Asperger's Syndrome/autism spectrum disorders.
 

 Hearing loss Association of America – National
Provides information about assistive technology equipment, support groups, services, advocacy, and programs that help individuals cope with hearing loss. Information on the website is free. A low fee membership is available to gain access and discounts to various services. Please see website for more information and to locate a chapter nearest you.
 

Hemophilia Parent Support - Provides parent-to-parent matching for parents whose children have hemophilia and activities for patients and families for networking and support.

Humanitarian Foundation - Grottos of North America - Dental Assistance Program
Provides free dental care for children under 18 with developmental disabilities, cerebral palsy, mental disabilities, muscular dystrophy, autism spectrum, down syndrome or transplant patient. The Dental Care for Children with Special Needs Program has local Grotto representatives that are known as our "Dr of Smiles". These representatives are the liasion with the parents, dental offices and hospital and anesthesia offices when necessary, to see that all paperwork is provided and properly completed. They also file the application with the Humanitarian Foundation office where all cases are processed and he maintains contact with the parent and dentist. To find a representative closest to you, select your state from the drop down menu provided on the website.
Conditions: Asperger's Syndrome, Autism, Cerebral Palsy, Developmental Delays / Disabilities, Down Syndrome, Mental Disabilities, Muscular Dystrophy, Neuromuscular Disorders
 

Huntington's Disease Society of America - Committed to promoting and supporting research to find a cure, helping families and communities affected by this disease and educating the public and healthcare professionals about HD.

HUGS (Help, Understanding & Group Support) - Provides support and family services to parents of children birth to 21 diagnosed with having a life threatening illness or considered to be medically fragile.  Provides service to the whole family.

Hydrocephalus Association – National
National non-profit organization providing support, resources, education and advocacy for families and individuals dealing with the complexities of Hydrocephalus. Publications are also available in Spanish. Services include an Outreach Program which provides free information to families and individuals; telephone support for one-to-one personal support by trained specialists; social activities and an annual conference for providers and families.
Conditions: Brain, Developmental Delays / Disabilities, Disabilities, Established Condition, Language / Communications Disorders, Learning Disabilities, Mental Disabilities, Neurological Disorders, Physical Disabilities, Special Needs
 

Hyperbaric Medicine Center - Hyperbaric Oxygen Therapy (HBOT) is an FDA, AMA approved non-invasive medical treatment used to deliver high doses of oxygen inside the body.  100% oxygen is administered via a mask or hood while resting comfortably inside a pressurized hyperbaric chamber.

Hyperbaric Rentals Hawaii Rents Hyperbaric chambers short and long term.

'Ike Pono, Limited - Specializes in serving the education market, including special needs parents, students, and teachers.

Inclusion.com - An online resource about inclusion.  Together We're Better.  All Means All. Inclusion Means WITH - Not Just IN.

Inculsion Services - The Department of Parks and Recreation, City and County of Honolulu is committed to making all of its programs and leisure services accessible to everyone, including persons with disabilities.  If you have need for reasonable modification, please call your local park or Therapeutic Recreation Unit.

Independent Living USA - Provides a listing of independent living centers by state.

Insure Reading Success - Helping children with emotional and physical challenges learn to read.

International Myeloma Foundation - International Headquarters
The International Myeloma Foundation is a non-profit organization dedicated to improving the quality of life for multiple myeloma patients while working towards prevention and a cure for myeloma. The International Myeloma Foundation provides these services: patient information and research funding, clinical meetings, patient/family seminars, and support groups in your local area. There are publications in Spanish.

Internet Special Education Resources
ISER is a directory of professionals, organizations, and schools that serve the learning disabilities and special education communities. We help parents find local special education professionals for learning disabilities and attention deficit disorder assessment, therapy, advocacy, critical teen issues, and other special needs. We also offer a directory of Special Needs State Government agencies, Teacher Training and Certification Programs, and Special Needs Software and Assistive Technology. Also provides links to camps, special programs and caregivers.
Conditions: ADHD / ADD, Asperger's Syndrome, Autism, Behavioral Difficulties, Disabilities, Learning Disabilities, Social Skills Deficits, Special Needs
 

Jonah & The Whale Foundation
Provides parents with Parent Binders and resource materials to encourage organization of medical and educational information and to further encourage better communication between all parties involved. The foundation also has a web library with books about many diseases and disabilities for parents to use or even purchase at low cost, a collection of durable medical equipment is also available for parents who have exhausted every avenue to obtain insurance coverage. Finally the foundation offers emotional support for the parents and siblings as well family networking for parents to meet others in similar circumstances.
Conditions: (Other), 5p- Syndrome, ADHD / ADD, Adrenal Hyperplasia, Congenital , AIDS / HIV, Allergies, Alopecia Areata, ALS, Amputee, Aphasia, Asperger's Syndrome, Asthma, Autism, Behavioral Difficulties, Bladder Exstrophy, Blind / Vision Impaired, Blood Disorders, Brain, Brittle Bone Disease, Burns, Cancer, Celiac Sprue, Cerebral Palsy, Chromosomal, Cleft Palate, Craniofacial, Crohn's Disease, Cystic Fibrosis, Deaf / Hearing Impaired, Depression, Developmental Delays / Disabilities, Diabetes, Disabilities, Down Syndrome, Dual Sensory Impaired, Dyslexia, Eczema, Epilepsy, Established Condition, General, Growth Problems, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Juvenile Rheumatoid Arthritis, Kidney, Language / Communications Disorders, Learning Disabilities, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mental Disabilities, Mental Illness, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Orthopedic, Physical Disabilities, Prader-Willi Syndrome, Sickle Cell, Social Skills Deficits, Special Needs, Spina Bifida, Spinal Cord Injuries, Tourette Syndrome
 

Juvenile Diabetes Research Foundation International
Provides information, referral and disease education services for children with diabetes. Also provides a newsletter, access to clinical trials and advocacy.
 

Kapi'olani Community College-Kapi'olani Deaf Center - Instruction for the hearing impaired.

Kapiolani Women's and Children's Hospital (Hawaii Pacific Health) Offers services to women and children - pediatric, bone and joint, oncology, heart, counselling and support groups throughout the Islands.

KidNeed
Website where children with special needs, families or others can log onto for comprehensive information, professional opinions on important topics, learn about public health policy and advocacy efforts, access links to programs, services and connect with other caring families and friends and purchase products
Conditions: Behavioral Difficulties, Developmental Delays / Disabilities, Disabilities, Language / Communications Disorders, Learning Disabilities, Mental Illness, Physical Disabilities, Social Skills Deficits, Special Needs

Kids As Self Advocates - KASA is a national, grassroots project created by youth with disabilities for youth.

Kids.gov - Kids.gov is the official kids' portal for the U.S. government. It links to over 1,200 web pages from government agencies, schools, and educational organizations, all geared to the learning level and interest of kids.

Learning Disabilities Association of Hawai'i - Supports parents of children with any disability through: Information/Referral program, Education and Training program, Advocacy and Mentoring program, Persons-In-Need Project

Leukemia & Lymphoma Society – National
Provides financial assistance for some medications, co-payments, therapy treatment, and transportation to treatment centers and for certain types of blood tests for those in need. Anyone verified by physicians as having lymphoma myeloma, Hodgkins disease or leukemia is eligible. Also provides information and referral services, support groups, and discussion boards.
Conditions: Cancer, Hodgkin's Disease, Leukemia and Lymphoma, Myeloma

 Locks of Love
A non-profit organization that provides custom, vacuum-cap hairpieces to financially disadvantaged children with long-term medical hair loss.
 

Lupus Foundation of America, Inc – National
Lupus Foundation of America provides current information, educational programs, and outreach services to improve the quality of life for children with lupus while also supporting research. The national website has links to local chapters.
 

Make-A-Wish Hawaii - Local Hawaii chapter of Make-A-Wish, a national organization granting wishes to children with life threatening impairments.

March of Dimes – National
Offers education, information and referral services to families with children of developmental disabilities. For questions about March for Babies, special events, or other local activities, please contact the local March of Dimes office nearest you
Conditions: Developmental Delays / Disabilities, Physical Disabilities

Medic Alert
The MedicAlert Foundation is a leading healthcare informatics organization dedicated to providing services to our members that protect and save lives. MedicAlert provides comprehensive Kid Smart services that can safeguard and identify your child in an emergency. With a single phone call, emergency response personnel can access medical history and records, protecting your child against potentially adverse treatments or medication conflicts. When you complete the application, you must list all conditions, allergies and medicines even though they are not listed on the application. Cost is just $39.95 for first year enrollment, and $25 per year thereafter. Sponsored memberships are available for those who meet the requirements. E-mail: If you are a MedicAlert® Member please include your name & Membership Number.
Conditions: (Other), 5p- Syndrome, ADHD / ADD, Adrenal Hyperplasia, Congenital , AIDS / HIV, Allergies, Alopecia Areata, ALS, Amputee, Aphasia, Asperger's Syndrome, Asthma, Autism, Behavioral Difficulties, Bladder Exstrophy, Blind / Vision Impaired, Blood Disorders, Brain, Brittle Bone Disease, Burns, Cancer, Celiac Sprue, Cerebral Palsy, Chromosomal, Cleft Palate, Craniofacial, Cystic Fibrosis, Deaf / Hearing Impaired, Depression, Developmental Delays / Disabilities, Diabetes, Disabilities, Down Syndrome, Dual Sensory Impaired, Dyslexia, Eczema, Epilepsy, Established Condition, General, Growth Problems, Heart, Hemophilia, Hodgkin's Disease, Infectious Diseases, Juvenile Rheumatoid Arthritis, Kidney, Language / Communications Disorders, Learning Disabilities, Leukemia and Lymphoma, Liver, Lung, Lupus, Meningitis, Mental Disabilities, Mental Illness, Mitochondrial Disease, Multiple Sclerosis, Muscular Dystrophy, Myeloma, Neurological Disorders, Neuromuscular Disorders, Orthopedic, Physical Disabilities, Prader-Willi Syndrome, Sickle Cell, Social Skills Deficits, Special Needs, Spina Bifida, Spinal Cord Injuries, Tourette Syndrome

Miracle Flights for Kids - Miracle Flights for Kids® is a national, 501(c)(3), nonprofit organization that’s dedicated to helping very sick children overcome financial obstacles that prevent them from getting access to the correct medical care and treatment.

Mortgage & Refinance Guide for People with Disabilities - Offers information on Key steps to the home purchase process; types of mortgages available; services available for a disabled homeowner; useful Housing resources for disabled citizens.

Muscular Dystrophy Association - National
The Muscular Dystrophy Association has become one of the nation’s largest and best-known voluntary health agencies. MDA provides comprehensive medical services to thousands of patients at some 225 hospital-affiliated clinics across the country. The Association’s worldwide research program, represents the largest single effort to advance knowledge of neuromuscular diseases and to find cures and treaments for them. MDA also has 90 summer camps throughout the U.S. Visit the website to locate your local office.

National Association for Child Care Resource Referral Agencies (NACCRRA)
NACCRRA is the national network of more than 800 child care resource and referral centers (CCR&Rs) located in every state and most communities across the US. CCR&R centers help families, child care providers, and communities find, provide, and plan for affordable, quality child care.
Conditions: (Other), Disabilities, General, Special Needs

National Down Syndrome Society - Committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.

National Multiple Sclerosis Society - A society which promotes research, education, advocates on critical issues, and organizes a wide range of programs including support for the newly diagnosed and those living with MS.

National Association of the Deaf (NAD)
Offers civil rights advocacy, grassroots and youth leadership development, and legal expertise across a broad spectrum of areas. Provides a variety of deafness-related information, such as assistive technology, and publications as well. Specific services include public information, information/referral, technical assistance, training seminars, conferences, policy analysis, guidance and research. The NAD Youth Leadership Camp (YLC) is a four-week summer camp program for deaf and hard of hearing high school students.